Hi! I am Corky Mayo, the volunteer blogger for NF FIRST. I will be posting blogs here from time to time. I am not an NF expert. Or a doctor. I am a concerned and interested grandparent. If there are any topics you would like to see discussed here, contact me at This email address is being protected from spambots. You need JavaScript enabled to view it.. I will do my best to locate appropriate information.

Just a little about me:

My grandson has NF type 1. We have been through 2 brain surgeries, 1 shoulder plexiform surgery, and deal with autism and significant developmental delays every day. We spend a lot of time at doctors and are fortunate to be in the area of Riley Children’s Hospital’s NF Clinic. We remain very, very grateful that Shawn is happy and his NF is not a “worst case” scenario.